The MP for Clwyd South is calling on NHS Wales to share comprehensive dementia diagnosis data.

Simon Baynes recently attended a Parliamentary reception hosted by the Alzheimer’s Society where Welsh MPs learned that, unlike the UK Government, NHS Wales does not publish a dementia diagnosis rate.

The event coincided with the charity’s Dementia Action Week campaign earlier this month with the aim of raising the importance of dementia diagnosis.

The tagline “It’s not called getting old, it’s called getting ill” encourages people who are worried about their own or a loved one’s memory, to seek support in getting a diagnosis using a ‘symptoms checklist’.

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Mr Baynes said he is joining the Alzheimer’s Society to call on NHS Wales to make sure that comprehensive dementia diagnosis data is collected and published centrally on a national level so that Wales’s performance can be compared to other parts of the UK.

He said: “There are around 50,000 people in Wales living with dementia, but we have no way of knowing what percentage are actually diagnosed with the condition.

“Everyone living with dementia deserves an accurate, timely, and high-quality dementia diagnosis so they can access vital care and support, and plan for their future.

“High-quality data will benefit people with dementia, and enable NHS Wales to plan resources more effectively.”

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James White, head of National Influencing at the Alzheimer’s Society, thanked Mr Baynes for showing his support.

He added: “In England, the dementia diagnosis rate fell below the national ambition during the pandemic, and it has remained stagnant around 62 per cent ever since.

“More than 30,000 people have missed out on a diagnosis during this period.

“We believe it’s better to know – nine in 10 people told us they benefitted from getting a diagnosis as it meant they could access treatment and advice and plan for the future.  

“In Wales, we don’t even know the scale of the diagnosis challenge, so we need high-quality local and national data as soon as possible.”

For support and information about dementia visit  alzheimers.org.uk/memoryloss or call Alzheimer’s Society on 0333 150 3456 or 0330 094 7400 (Welsh-speaking number).